Jaime Kaplan

Featured Patient Story

 Jaime Kaplan

My older sister, Barbara Kaplan, started having shortness of breath in October of 2019. She went to her internist in Miami, Florida, and a chest x-ray which showed fluid in her lungs. Her internist immediately referred her to a cardiologist who suspected amyloidosis. She was diagnosed a few days later and was started on Vyndamax shortly after. Her 3 siblings were advised to get tested for the gene. Our two brothers were quickly tested and both were deemed negative. Our mother was tested and is negative as well. Our dad is deceased.

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Latest News Story Headlines

2025 Winter Newsletter
Be sure to catch up on the latest happenings in our winter newsletter.
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Intellia Therapeutics Announces First Patient Dosed in the HAELO Phase 3 Study of NTLA-2002, an Investigational In Vivo CRISPR Gene Editing Treatment for Hereditary Angioedema

January 22, 2025

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Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy

Nov 25, 2024

− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −

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Calendar & Upcoming Events

Webinar: Mind Over Matter - Empower Your Healing Journey

 Webinar Session, Wednesday, Jan. 22nd, 2025 at 6 PM (ET)  Zoom Meeting

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Webinar: Living Fully with Amyloidosis: A Roadmap to Fulfillment

 Webinar Session, Wednesday, Jan. 29th, 2025 at 6 PM (ET)  Zoom Meeting

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Nashville Support Group Meeting

When: February 1st, 2025 1:00 am CT

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