Featured Patient Story
Edgar Baxton II
Edgar Baxton, 65, is a health teacher at the Fort Dodge Middle School in Fort Dodge, Iowa. He also coaches junior varsity volleyball at Fort Dodge Senior High. He was diagnosed with amyloidosis in 2015 and needed a heart and liver transplant to save him.
What transpired through his medical journey was a true out-of-body experience that changed his life physically, mentally and spiritually, according to Baxton.
“It makes you become very aware that there is more to life than what we have right here,” Baxton said. “Everybody wants to live today, but there is a life beyond this life.”
read moreLatest News Story Headlines
Acoramidis Shows Statistically Significant Improvements in Cardiovascular Outcomes in Patients with Variant ATTR-CM
PALO ALTO, Calif., March 31, 2025 (GLOBE NEWSWIRE) -- BridgeBio Pharma, Inc.
Intellia Therapeutics Announces FDA Regenerative Medicine Advanced Therapy (RMAT) Designation Granted to Nexiguran Ziclumeran (nex-z) for the Treatment of Transthyretin (ATTR) Amyloidosis with Cardiomyopathy
CAMBRIDGE, Mass., March 26, 2025 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.
Alnylam Announces FDA Approval of AMVUTTRA® (vutrisiran), the First RNAi Therapeutic to Reduce Cardiovascular Death, Hospitalizations and Urgent Heart Failure Visits in Adults with ATTR Amyloidosis with Cardiomyopathy (ATTR-CM)
Mar 20, 2025
− Novel Mechanism of Action Delivers Rapid Knockdown of Transthyretin, Addressing the Disease at its Source –
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Patient Spotlight - Up Close & Personal with Manny Magos
Webinar Session: Wednesday, April 30th, 2025 at 6 PM (ET) Zoom Meeting
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Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
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Zebra T Shirt$15.00FLASH SALE: Pick up our Zebra Shirt for $15.00 while supplies last! L, XL & XXL - SOLD OUT!
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50% cotton, 50% polyester.
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Featured Product
Logo T Shirt$15.00FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last!
Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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